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| Summer 2005, Custom Building one of two-hundred, US, donated wheelchairs, in a rural region of Argentina.
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My name is Herman Kees Ronde (a.k.a. Case), and I write to you as a Challenge Aspen
and Aspen Skiing Company, ski & snowboard instructor who is facing a personal
medical journey that I hope you are able to help me overcome.
 Firstly, I would like to give you some personal history so you
have a better understanding of where my professional journey and involvement with
people with disabilities has taken me. I have a deep passion for the mountains
and because of this, I have been led down a path to helping people with disabilities
to enjoy what I love and love to share, so much.
Soon after my first snowy mountain experience, I became entranced with "the mountain"
and its lifestyle. Living in Winter Park at the time, which is the home of
the National Sports Center for the Disabled and the US disabled ski team, it did
not take long for disabled athletes to cross my tracks. These top athletes
and the participants of the N.S.C.D. showed such great enthusiasm that I immediately
gave up on my Dutch engineering career in order to pursue a career in teaching snow
sports, with a focus on the disabled.
My passion for snow sports and its enthusiasts has taken me around the world for
close to two winter-decades now.
Since then, I have self-funded my travels around the world, teaching others the
art of adaptive skiing and snowboarding, and assisting programs like Challenge Aspen
in Colorado, Ski Portillo, the Teleton Foundation and la Parva Instructors in Chile,
and Desafio Bariloche in Argentina (to name a few).
Here are a few tales of my encounters (from around the world):
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 Very early in my adaptive career I was the assistant of an adaptive
ski school in California. One of the instructors had problems with one teenage,
autistic, student. This student wanted to jump wherever he could, or he would straight-line
it down the hill. For safety reasons this instructor would tether him from the waist.
On one particular day, I was the only one available to go out with him and started
on a similar note, body tethers and all. After a few runs I figured out that he
indeed really wanted to jump (with his skis) wherever he could. Although I
was told to restrict the jumping (it will never stop, I tell ya), I let him "go
nuts". It did not take more than about four or five hits on small natural
terrain features, for me to see a change in the level of anxiety. Continuing to
allow him to jump, I noticed that he would listen to ski instructions/commands,
unlike he'd ever done before. A few (jumping) Saturdays had passed and my
student and I started to get to understand each other more and more.
One Saturday we stood at the top of a green run and I decided to release him from
the waist tethers, since he had shown great form and attitude. Next thing
I know my student races straight to a small roller. He gets less than one
foot of air, stops, turns around, looks at me eyes aglow and grinning ear to ear,
checks the jump and landing, looks at me one more time with that unforgettable "thank
you, I did that all alone" smile from ear to ear, turns around and takes off, like
Herman Mayer, straight line, down to the lodge. Immediately I am thinking,
oh no, oh no, please dear God, do not let him crash (or worse). I finally
caught up with him in the cafeteria, where he had already (tackled and) told his
"greatest ever" experience to his school teacher. We went out on the slopes
many Saturdays after that and as it turned out, in this case, jumping and setting
him free (with boundaries) was the "best day ever" that had happened to him.
In 2005, a team from Challenge Aspen traveled to Ski Portillo, Chile and La Parva,
Chile and Bariloche, Argentina to train teaching staff the art of adaptive ski instructing.
We also handed out over 200 wheelchairs as part of the mobility project. This successful
project runs on donations and on the participation of volunteers who pay their own
way.
 It was during this project, in a rural area over two hours south
of Bariloche, that I encountered people riding their bare rims (for years).
Some had not left their house for over five years because they did not have a wheelchair
or their village had one wheelchair for more than five people. I cannot describe
the utter joy and gratitude displayed, while fitting chairs, with tears and all.
Right at the moment of packing up for the day, a man appears in the doorway.
He had seen the wheelchair/mobility project on TV, had taken his car and driven
for hours in the hope to catch us setting people up with wheelchairs. I glanced
over his chair and he tells me that he is a metalworker. Obviously, his chair
had undergone numerous welding repairs and alterations. Proudly he shows me
his car and the metal stick/hand controls, for clutch, brake and accelerator.
All self/custom made and this system had already worked in several previously owned
cars. We return back inside, were there were only a few wheelchairs leftover.
Several adaptations later and this gentleman was able to put a brand new wheelchair
in the back of his car. As we shook hands and said our goodbyes, I asked him
how long he had used his previous chair. Twenty-five years he quietly answered.
Believe me; I stood there on the roadside long after his cloud of dust had disappeared.
Working with the teaching staff of Portillo, during a week in which the "Teleton
kids" come out to have their first snow/slide experience, is of a different caliber.
All types of disabilities run the gamut and I had been asked to teach snowboarding
to three amputees. One below the knee, with prosthesis, one with a whole leg
prosthesis and one without arms, no prosthesis. All three children learned
to snowboard solo at a phenomenal pace and during our week of snow fun, we attended
a huge Chilean Asado (BBQ). It is there where the blond haired, blue eyed,
six foot two, weighing two hundred pounds, oh so cool, snowboard instructor gets
invited to a game of table tennis (=ping pong). I walked over to the corner
of the yard and to my amazement; my opponent is no less than my "no arms" student.
Can you already guess the outcome of the match? Indeed, I lost and by a long
shot! I was certainly taught about a level playing field!
It has been a fantastic journey with mind boggling, humbling and odds-defying encounters,
lifelong friendships and my passion for this lifestyle has not slowed down or disappointed
me yet.
The successes I have seen in the lives of my students - beyond just skiing and snowboarding
- have made me immensely proud and it is the personal fulfillment I receive from
helping others that spurs me on season-after-season.
However, in order for me to continue creating "The Best Day Ever" I need your help.
Please let me explain what kind of -180 degree- turn I have encountered this past
summer.
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A summer
of treatments
I went back home to the Netherlands in May after teaching the 2006-07 season in
Aspen/Snowmass, my home base for the past 6 winters. I visited family and
friends and slowly gained strength for another adaptive winter adventure in Las
Leñas, Argentina. I was going to Las Leñas to help expand the adaptive program
though the introduction of adaptive snowboarding, bringing in new equipment and
teaching the instructors on how to better prepare for our demanding lessons.
Close to my departure date, I noticed a small lump in my upper right leg.
Knowing it would be better to have things investigated in Holland rather than later,
in the Andes, I had myself tested at several hospitals. After a month of clinical
tests the final diagnosis was melanoma level 4 (metastasized skin cancer).
I underwent surgery on my upper right leg in Holland and seventeen lymph nodes were
removed. A biopsy showed that five lymph nodes had caught/trapped the cancer
cells, however, one had exploded (opened up). While recovering from this surgery
(with a clean bill of health) I went to a cancer specific hospital to find more
advanced treatment. Several hospitals and laboratories rejected me, mainly
because some oncologists deemed it appropriate to have more surgery immediately
(without conducting any preliminary tests) and/or because melanoma (skin cancer)
treatments have not yet proved successful in the Netherlands.
Because of my many world travels, I have kept in contact with a Chilean journalist,
who after hearing about my medical ordeal researched alternative cures for the most
aggressive type of cancer: melanoma. (When these cancer cells reach
vital organs, a life expectancy is less than 1.5 years.)
This Chilean angel discovered that since 2001 a company called Oncobiomed has used
progressive cancer therapy in Chile, with up to a 70% success rate. Oncobiomed's
treatment is based on the manipulation and stimulation of the patient's own immune
system and involves culturing of the patient's own cells, which are re-injected
in order to cause an immunological response against the melanoma cancer cells.
After exhausting all available medical options in Holland, I booked a flight, set
off for Chile, and underwent a treatment course of four "shots" of the Oncobiomed
vaccine in four months. In between the first and second vaccine, I had an x-ray
and Pet scan, which detected more growth. A second surgery, removing more
lymph nodes and a hematoma cleanup from the previous Dutch surgery, was necessary.
After the third vaccine, another x-ray and CT-scan found more growth in the abdominal
region.
On a positive note, blood tests showed that my immune system (white blood cells)
had increased about 35% in between vaccine number two and three. During the
third operation, all lymph nodes, up to my kidney, have been removed. My appendix
has also been removed in order to prevent future appendicitis and any further stresses
on my immune system.
The fourth vaccine was given on October 22, 2007, and the medical team at Oncobiomed
has now recommended an ongoing treatment plan of doubling the dose from four "shots"
in one year, to eight within ten months. After this period, I will continue
with an ongoing treatment of four vaccinations a year over a time span of five years.
Oncobiomed believes deeply in this treatment plan, mainly because I am a young,
strong and healthy individual with outstanding survival opportunities.
The core of the matter is that I have sponsored
myself throughout this treatment by taking out a personal loan and funding from
family. These financial resources have now been exhausted and costs are "shooting
through the roof" mainly due to the doubling up of the vaccine schedule and the
cost of flights to and from Chile during my winter work schedule. In dollar
terms, I need US$20,000 within the next six months and about US$90,000 over
the course of the next five years. Definitely not a small feat
to achieve for an adaptive ski instructor!
This brings me to my request of you - are you (or an organization you know),
able to provide me with financial assistance through my treatment?
Your generosity would be much appreciated! Besides financial assistance, I could
also use Frequent Flyer Miles from Delta, American Airlines or Continental, in order
to reduce the cost of travel to and from Santiago.
My friends and colleagues at Challenge Aspen and the Aspen
Skiing Company have been wonderfully supportive during my treatment
and again now, by supporting me in my quest for financial support. |
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A very generous anonymous donor has agreed to match all donations up to $3000.
So that means for every dollar that you contribute I will receive $2.
I have set up a bank account at Alpine Bank that you can deposit directly into.
Please make any checks out to;
"Melanoma Fighting with Case"
Alpine Bank
PO Box 5490
Snowmass Village, CO 81615
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 Please contact me at any time:
I want to take this opportunity to thank you for your support and assistance.
Thank you in advance,
H.K. "Case" Ronde.
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Welcome
to the info page about the world’s first and only melanoma vaccine available
(With
+60% success rates):
The
following links will bring you to:
Oncobiomed and their
vaccine; Tapcell.
Homepage,
Oncobiomed (English version):
http://www.oncobiomed.cl/ing-frontpage.htm
Homepage,
Oncobiomed (Spanish version): http://www.oncobiomed.cl
Project Fondef; Research And Development of Biological
Vaccines for Oncological Immunotherapy.
Homepage,
Project Fondef (English summary):
http://www.inmunoterapia.cl/summary.htm
Homepage,
Project Fondef (Spanish version): http://www.inmunoterapia.cl
The short of it:
Cancer
is a generic denomination, which includes different forms of the same illness. All
forms of cancer have in common that a group of cells begin dividing without control.
This leads to the formation of tumors, which can spread throughout the body, threatening
the life of the affected patient.
Oncobiomed
is a biotechnology company, which provides highly specialized Dentritic Cell based
therapy for the treatment of cancer, located in Santiago, Chile.
This
therapy began in 2001 and has shown to be very affective on various levels in fighting;
Malignant Melanoma, Colon, Prostate, Breast and Kidney Cancer.
The Therapy explained:
Immunotherapy
is based on the activation of the patient’s immune system. Oncobiomed isolates certain
white blood cells (monocytes) from the patient’s blood and maintains them in cultures
in high security laboratories. These cultures are stimulated with a specific selection
of biologically active proteins known as cytokines, which transform the immature
cells into their mature counterparts: antigen-presenting cells.
Tumor
cell components obtained from the patient or from our own cell cultures are used
to sensitize these Dendritic-like cells, named TAPcells®, against the particular
patient’s type of cancer. These “trained” cells are re-injected intradermally to
the patient causing an immunological response against cancer cells throughout the
patient’s body.
Any Questions?
Email:
Info@oncobiomed.cl
Phone
Number (Chile) +56-2-23647156 (be prepared to speak Spanish)
Email
me;
Case@curecase.com
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Thanks for
choosing the donation page.
You are just a few clicks’ away from helping
Case with his melanoma treatment plan.
Option 1
-
www. Paypal.com: (commission free):
Use your PayPal
account and submit your
payment to, telekees@hotmail.com
Option 2
- write
and mail a check: (commission free):
Pay to the
order of:
MELANOMA FIGHTING WITH CASE
Mailing address:
Alpine Bank
PO Box 5490
Snowmass Village, CO 81615
Option 3 -
Debit or Credit Card:
(4% commission deducted from donation!):
“Hit” the
big bright donate button available on every page and follow the directions.
Option 4
- Air miles: (check for transfer fees!!):
I can definitely
use your Air Miles.
Please transfer
your miles from:
DELTA, CONTINENTAL
or AMERICAN AIRLINES.
Into equal
airline, air mile plans, under my name and address:
H.K.Ronde
PO Box 5628
Snowmass Village, CO 81615
Let me emphasize
that your donation will not only keep me on track (=alive), but it will also aid
Oncobiomed in their quest to “fine tune” Tapcell, worldwide the first melanoma
vaccine.
Thank you
very much for choosing any of the above options.
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